Sunday, December 09, 2007

How Can I Complain? Look around us and things are tougher for all.



I’m trying to keep updating on a two week update but have repeatedly failed you, my apologies. Thanks for hanging in there with me. Knowing you are still interested in me is that extra medication that often takes me over the top.

Each day I take an inventory of just those I am surrounded by – unbelievable. Where did I find such good people? I used to be a leader in measuring those who just didn’t measure up, until I realized I was focused in the wrong direction and on the wrong people. My reflections, prayers and wishes for the present and future are now more on the stick. I’ll try to get with it and try to spend a future trying to fit a little more snugly into His shoes (have you counted all the trys in that sentence???).!!!!!

Kris will probably need an operation as a result of latest fall and feedback from MRI. My last cataract operation last week finished with a 20-25. Laura brings joy and smiles to our faces every day and every day from new experience. Seems like yesterday when Tara and family were here from Colorado and that yesterday will be repeated tomorrow as they return again for a visit until Sunday morning. We are planning a blast as we also celebrate Zoe Brooklyn’s 2nd birthday. Mike and Jessie have announced their engagement for mid July of ’08. A few of the reasons why God may have postponed my final separation from Him before taking a shot at those last steps of the journey. Last two weeks were transition weeks in my chemo program and were tough ones. My friend Phil Foucauld has returned to further treatment of his multi myeloma, and it looks like a similar or identical program as mine. It’s done wonders for me and I wish no less for him. As my miracle man, Doctor Cox says none of us is really the same. Please include him and his spouse in your prayers. There is no doubt in my mind that if we had added our blog counter from day numero uno, we’d be at over 4,000 hits, and mingled in that many hits, there would have had to have been a special one.

I’m really tired tonight so I think I’ll sign off. I lost one entire night of sleep this week and have not made up for it. Take care. God bless you and yours.

Friday, November 02, 2007

Should I have died by now?

What a question for me to honestly ask of myself. I look in the mirror and see a face and body that has evolved a long way since I first hit that low point of 115 and was told that I had less than 2 weeks to put myself together for a rather long and unique end of life journey. Wow! How much has happened since then.

Perhaps the most difficult to comprehend was the passage of so many others. Perhaps, Chuck Bussey was my biggest shock. As I look back I would call it a more than life relationship. We didn’t have much time together. We had a friendship that kept work in it’s proper relationship, but then beyond that we had a sense that there was more to life than just work, we shared a sense of the importance of our families within the importance of many other things, a sense of the uniqueness if the past, but yet room for still more. I could go on, but I’ll leave it there – there was a comfort that in a short relationship in this life I would be uniquely remembered by him in this relationship of the future. Shortly before his death he sent me a copy of his brother’s award winning book of poetry. I keep it at bedside. He was very proud of his brother, as I sensed his brother was of him. Their sensitivity with the meaning of words and the words of our language was an education in itself for me.

There were many others. Some I re-found from the early days, but from friendships that had never been severed, just traveled down different paths. At my 50th reunion from high school I listened in amazement from a slice out of life from the Seinfeld series. A classmate, Mancuso, told me about a race between he and I that I had never remembered. There was one spot still open on the Penn Relays Mile relay team. Our coach arranged for a run off between he and I for that position. Mancuso said that he led for the entire race until the last few seconds when I swept past him for the slot. The Penn Relay’s were the most sought after of all trips available to us. What he never knew was I wasn’t sure if I could even come up with the few cents necessary to meet at our central departure place together.

God has been good to me these past two years. I have had to ask myself – what about all the others who have been so good to me? Kris and the kids who have been through so much every single day without relent, friends who have never asked for escape from our friendships, the new friends and acquaintances who are always willing to step in and help. My repayment has been meager. I pray with them and share my pain with them. I am sort of blessed by my hands. My hands are uniquely scarred and blood damaged. At first, I was so proud that my hands were clear and unmarked, but soon the ugliness sneaked in and I was reminded daily that within me there was an illness that was not easily going to relinquish its grip on my life and in the end would be the victor after taking its share every day. The fight was on and would not cease until the very end.

I’m going to bring this to an end but not without first reminding you that there are many others in your midst who right now – aware or unaware may be more ill than I am at this moment. We are all His children and worthy of his love. I remember you all every day and ask the same of you. Be good to each other – share the good things of your lives together with each other. Don’t focus on the negative aspects of your lives, but on the wonders and the gifts of such wonders and such blessings that you have been gifted with. Plan today how you might make another’s just a little more memorable. Take care. Last night , Halloween, I sat in my wheelchair outside, in the dark, at the top of my driveway, and as I froze my bottom off I thought of how blessed I was to say trick or treat and then wonder was that my line or was it the kids = what did it matter – we all smiled and laughed and it made for a nice Halloween.

Excuse me! Was that a whistle? What do you mean? Nice legs?

Now I know what Greta Garbo and the rest of Hollywood’s old superstars felt like. My new stockings have not only provided a curative function! Now! I also have beautiful “gams” with no fear of them turning into elephant legs.

Kristen/Chloe had her own uniquely bad week. Few of us realize how difficult it is to be a care giver and especially when you love the patient. Kris slipped and fell on a scatter rug in our main entranceway while trying to do multiple chores at the same time. The result was broken wrist, nose and bone above one eye. Only the wrist was able to be put into a cast. Pain and discomfort have not prevented her from continuing multiple tasks. The cancer is less painful than trying to get Kris to slow up. There is no doubt in my mind that I would now be dead if it were not for Kris and Dr. Cox. On this past Saturday she sat in our van all day while I took a full day’s class in PhotoShopElements at Pierce Education Center. I have not been nor evidently will not be allowed to be out of her sight for the rest of my life. At times she will relinquish this to other intimate family members only after they have passed all tests to be Certified Frank Kabisch Care Givers and believe me passing that test is not easy. For more than thirty years I don’t think I have ever met anyone who doesn’t know how much I love Kris, but maybe like many men I haven’t always been that gifted in letting her know the same thing. For that, I have many, many regrets as I persist in that same fault. Not only Kris, but my kids deserve better than that.

I’ve been able to manipulate and enjoy the hills and streets of Madera with new chair. I hope to get out soon and capture the trees as they once again change colors. We have lived in Madera for over twenty years and each time I venture out I enjoy its beauty in ways I never did before. Kris and I had a good trip recently to Nisqually. I was able to join the crowd one afternoon on the roads of the new local Golf Course. Again capturing the beauty of Puget Sound in an entirely new way. The vistas are magnificent and always different. We’ll have to go back for lunch some afternoon. We understand the food is good and the prices reasonable. Also escaped the family at the end of a meal on Rustin Way and while they sat and BS’d, I did the entire stretch of Ruston at my own pace. I’ve spent more time at the Zoo than some of the animals and have the photos to prove it. Each trip leaves me totally exhausted but so thankful for escaping my bed which has been my prisoner for almost two years now. God has been so very good to me. My book remains unfinished but progress continues.

In the midst of so much I have also learned to live with the exhaustion, tolerate the pain, fill in a huge amount of time with all the different aspects of care and medications, learn more and more with each transition of medications the different patterns of change that rage through my body and leave me open to the toughest of all which is depression. I love all my medical team and may be one of only a few who know more about staffing personal problems (not sought after) than most. I can’t tell you the number of “second efforts” provided to me over these past few years. Although turnover has been minimal, each one has been like losing a good friend. I still try to stay ahead on my personal goals but find little time to meet the demand. I’m really disappointed in not keeping up with my painting and photography but hope this winter will allow some peace and quiet for this. I have returned to saying Mass privately and that has meant an awful lot to me. One of my best priest friends from Seminary days has just had his cause for Sainthood officially moved ahead. He was shot to death in the early eighties in Guatemala after three hit men tried to make him into one of the missing. It was their goal to remove him from his rectory and kill him somewhere and become one of the missing. He was strong as an ox and able to resist them enough that they had to shoot him and leave him to die alone because it had taken so much time and caused such a ruckus. I’ve always considered Stan a special friend who continues that friendship from a place I long to share with him. A politician he never was, a loving priest of the native people he always was.

Yesterday, I got the final word on second cataract removal. The first was better than twenty so cross your toes. More medications coming my way. It looks like they are beginning to cut up different parts of the old body – want to put in an order?

My grand children from CO will soon be here for a quick visit. Kris will be making a quick trip to change babysitting assignments from me to the kids. Mike will assume duties here with me. He will live in fear of his life until Kris returns and gives him a heads up on a job well done. The kids have come and gone. We had nothing less than a magnificent time. The laughter and fun were fantastic. I just listened and laughed and laughed and laughed with them. They make quite the team – they really enjoy one another.

My congratulations to one in our midst who has recently became a grandfather. I couldn’t be happier for him. God bless the entire family. We all need each other so much. Let’s make it a better world.

Although I have not written of late about Laura my Pediatric Cat so as not to bore you to death with the wonders of my life, she has truly been one of the wonders of the world for me. She has done so much for both Kris and my morale. In fact I would extend that to the entire family. Bad Girl is so easily translated to – okay you won again and you can only get away with this for another thousand times or more. A friend was over one night to show his spouse how she retrieves and of course that night SHE DID NOT RETRIEVE. I guess I was just too tired.

If you ever get a pet from a pound the one thing I would like to know about and to meet if possible would be the family that volunteered for the Faster Care Program to keep and train before she/he was put up for adoption. The woman who had Laura was marvelous and even had a say in screening potential adopters – that’s why we got Laura – she put the jinx on a previous family who she thought was a mismatch. She did everything with her.

Again, I pray for you what I pray for myself and my family – peace. No matter what – may you have peace. Thanks for hanging in there with me. You have been wonderful friends.

Saturday, September 22, 2007

Catch-up – Revisit With Regards to Legs and Massage.

We seem to have gotten things in time. We will not have to bandage at night. What a relief. That sounded worse than a death sentence. Too much for Kris alone with everything else. I really feel I have begun to make some contributions around the house and in going out. Not much, but something. Gives me a little dignity. Tara and family will be here next month. Jessie loves Seattle U. These have been bad days for me. Tim and I went out to Olive Garden together yesterday. It was good for me. We will go to Seattle this week and meet with the other members of the clan.

Mike promised me he would not box. I begged him not to. Just when he gets his eyes fixed after all those years, he wants to lose them because he can’t quit when a guy is beating the shit out of him. We’ll see. They continue to break your heart and don’t ease up until there is nothing left. I know he will keep the promise. I didn’t want to do it, but I had to.

Friday, September 14, 2007

With The Good News – Comes Also The Bad (??)


This is my "after" picture. As you can see, not too bad, huh! I'll explain below.

The good – I’m still in a state of the cancer being controlled and that continues to be a miracle from the original 6 day death sentence; however, it now sounds like another incurable that will be a pest the rest of my life – it’s called lymphedema. It’s directly related to the swelling I have been having in my legs and the stockings I am still waiting for but should be here within days. My specialist may have some less dramatic information than I have found in the book she has shared with us. I hope she has and has caught the worst of this which I believe she has. She gave the book to Kris and said don’t allow me to see the pictures, but you know it became the only thing I was interested in seeing and reading about – sorry about that – Kris thinks they look like pictures of “elephant man”. Maybe that’s why I go to the Zoo so frequently.

You have to wear the stockings for the rest of your life and bandage them at night for the same period. She said she would teach us to bandage next visit. It looks like the – wise guy should have not flown to Denver after all. There are special concerns about flying. I’m still glad I didn’t know them – it was the opportunity of a life time and I’M GLAD NO ONE STOPPED ME. I’ve also been classified hypomanic which could be a good thing or a bad thing. Since I have a number of bad things creeping into my corner I’ll take it as good.

I continue to be out every day since I got my wheel chair, and although exhausting, it is also a good thing. I no longer fall asleep but pass out. Kris and I were at Nisqually – she was exhausted and revolutionary when I said I thought I could do the 5 1/2 mile trail. Thought she would feed me to the eagles. They may be back, but that doesn’t make them any less hungry.

Mike and Jessie had me to the Pound last week followed by lunch on Ruston Way and getting the tire fixed on the other car – too much for me - we skipped the Zoo, although Mike’s friend took me with his very sharp nine month old son – he’s trying to keep me young and doing a good job. I got some great pictures.

I’ve got loads of things on my medical schedule and saving an entire day for a full class in Adobe Photoshop. Got some financial stuff done when Kris’s sister was here for the month and they both got a lot accomplished with work around the house.

Monday, September 03, 2007

This Wheel Chair Has a Motor.

Yes freedom has arrived and after almost 2 years in bed. Except for medical related issues, I am out of prison. It is a dream machine – the Lamborghini of the wheelchair world. It can go 25 miles on one battery charge and it can do that at 6 miles per hour. It’s not easy for others to keep up with me.

This past weekend Mike and Jessie drove Kris and I to a Peace Corps friend’s wedding in Leavenworth. It was a great get-away for all of us. I knew the gal from my visit to Jamaica and knew them both from their visits to my home here after their return and relocation to Seattle and Deanna’s return to graduate school and work towards her Ph.D.

My pain changes constantly with medications and leaves me working with my doctors to reach some sort of stability - which I believe we are closing in on. My patch, which is an opiate, is just about at the top of the scale, but it has brought relief now that has been working for two weeks.

My new wheelchair brings with it – its own side effects. Edema is beginning to settle in. At the end of a day from sitting up in the chair – my feet, ankles and lower extremities of my legs are one big scary swollen mess. Today I went to be custom measured for my new beige compression stockings. They should be here within two weeks, and they should be “pretty.” Thank God for having the right insurance – the wrong insurance would have result in an “off the shelf” compression stocking that they claim would not really work well. She thought that some damage has already taken place and wanted to prevent as much as possible in the future. She was very pleased with the containment steps I had taken even not knowing what to do. This is one of those things that can lead to serious side effects that become no fun. I should have the stockings within the next two weeks.

Thursday, August 02, 2007

Frank Gets the Electric Chair!

Another visit with Dr. VanBuskirk, the team continues to define positions and that’s more good news for me. Even the best specialists in the world need time together to become as one, and mine is going in just that direction. They talk to themselves, to each other, to staff, to support departments. And they study well all the supporting organizations that can assist me. All this, while keeping an eye on the restrictions and allowances of my insurance plans and personal finances.

Yesterday was reinforcement and reflection in the area of pain with discussion of modifications – the good and bad of some thinking and further discussions with other team members, but I left convinced that I was also a member of the team with medical goals that would continue to be respected in decisions being made.

WOW! Blood draws and further analysis of my medical stats which we hope will continue to remain stable. Cross your fingers, but better still, say a prayer from your heart and soul. Next week time with Dr. Cox, My Doctor Columbo, who is always in the driver’s seat making the tough medical recommendations and decisions when necessary. I thank God for him every day.

Through the goodness of relatives, personal savings and medical plans, as of next Friday, we will have our new lift installed on our new 2004 Honda Odyssey. I’ve had an electric chair for two weeks, and it is the cat’s meow. It runs on the ceiling, climbs trees, scares bears, and has Kris huffing and puffing beside me. It has brought me unbelievable freedom of movement, and participation in retreats. It has instilled new interest in my drawing, writing, and desire to move about (yesterday – 4 hours out in fresh air). My breathing seems deeper and limbs feel stronger. I’ve got to remember the brittleness of my body, but all test drives bring me a renewed hope. The engineering is remarkable. I’ve got to stay away from teenagers who are known to go their full six miles an hour in reverse with eyes closed. My eyes would be closed but for different reasons. Excuse my excitement – I’ll get off this one. Don’t be surprised if you see the MP’s chasing me across the Parade Field one of these days - on the way to the Chapel.

My sister-in-law, Sheila, returned home to the east coast yesterday, after a four week stay with us. It was another of those wonderful visits. Every moment was spent in doing what she knew needed to be done. There remained the normal flow of visits from others, along with medical obligations, which seem to exponentially grow each month. Loads of laughs and good cheer with the care-giver who herself needs a lot of good cheer after almost two years now of unrelenting good care. She was almost out of here yesterday to deliver some cheer to grandson, Kellan, who is in two full leg casts. Further thought and reflection and use of other resources led to other decisions, and she’ll remain my #1 unless there are other changes that pop up.

One day retreat out to Hood Canal was excellent. We were able to take Sheila along with us, and it was a growth day for all of us. Nice facility, people, food and invitation for return visit. Ended with a request from Retreat Master for Private Mass for a friend who had just died several weeks ago. I continue to find a place for myself with whatever days I have remaining. I am better able to internalize my studies of life (history) reason (philosophy), and the Word of God and Living Tradition within the Church – the people of God in union with the hierarchy of the Church and find it not only to be mind boggling, refreshing, insightful and remain sane. I search each day for Peace with my brothers and sisters, an understanding of them through their reflections as poets, writers, people and individuals of love. Yes, there are frustrations, but there are breakthroughs and it helps so much. My doctor yesterday returned my updated book with such compliments and requests to be updated as I move ahead that I didn’t need my wheelchair when I left the office. It was where I wanted to be, and he evidently hit some of the points in his review that I had long searched for. That’s why you are getting murdered this morning by the length of this blog. However, I write when I can, and the last few months have been tough ones.

I’ll continue to reflect upon this. I do have a horrible disease, and I am under massive doses of drugs and opiates that leave me frequently in no man’s land. Enough said. God bless you all and hang in there with us. It’s nice just knowing you are there.

Sunday, June 24, 2007

Upswing after Longer Downswing

I can think of no-one right now other than Chuck Bussey. He and his family are in my thoughts and prayers daily, as I know I have been in his during this last year and a 1/2.

Spent loads of time yesterday with doctor who is fine tuning my pain management. I’m being tweaked and customized and very excited about the whole program. Coordination is such a big part of the program, and family is on the front line of everything. It may even help me to come up with a more accurate time table for my blogs, so don’t give up on me. My new doctor joins the ranks of the greats.

I’m scheduled for my cataract operation for noon on this Monday, June 25th. We have adopted a wait and see policy for the myeloma that sits behind it on the retina. If all goes well, we’ll move right on to the cataract on the left eye after a few days. Meanwhile, my vision takes a quicker nosedive every day and continues to give me a hard time with my reading. However, my continued exposure to people and their families keeps my complaints to a minimum. I’m not talking morbidity here – I’m talking hope, charity and faith. In simple terms – friendship, optimism of sorts and just a little less of myself for myself. It’s that thing we call peace. If you would have experienced the goodness in my home these last few weeks, I wouldn’t have to be writing this.

My electric wheel chair has been approved and is on order – maybe a week and a half. Will I get beat up if I get a Junior Hells Angel’s jacket. It goes 5 miles per hour and can go 25 miles on one fill – no gas – just electricity - that will not be cheap either. I’ll have to hit one of those hot houses. Is that a spa or massage parlor?

The Denver Family arrived on Tuesday, former secretary arrives on the 25th, sister in-law will be with us from July 6th - three weeks. Then some visitors from the east coast? Don’t have time to die – we’re too booked up.

Kris is ecstatic having all the grand kids (along with me). The back yard looked as full as the Point Defiance Zoo yesterday. However, we had more laughter and bumps on the heads. The Duke and the Therapeutic Cat are getting along fine. We had our concerns. Witness the bites on our hands. Zoe Brooklyn is still the love of my life which may cause a problem for the new #2 and #3. I may not be high on their list – I’ll have to check that out. Continue to remember you all and your families.

Hang in there and enjoy every minute of every day – and thanks again for your continued feedback.

Monday, May 14, 2007

Apprehension

I guess I had already seen how quickly those series of little numbers on my blood draws could quickly turn things upside down. Although I still have a good handle on death, I don’t exactly enjoy all the steps in the process. However, once again – nothing but good news. Doctor was in a great mood and it was contagious – “took a long time for you to get that sick – its going to take a long time to get you back.” Most optimism I have ever heard. He was amazed about my Denver trip. I’ll tell that wonderful story next blog.

Please, please – if you had been to the open door of death and were now working on again living a new but extremely limited new life – what would be your top 2 priorities? I need your help. It’s not an empty request. This blog has been magnificent in what it has done for me, but it lacks dialog. Some don’t write because they want to write profoundly – bullshit – I don’t want your profundity – I want you. I wouldn’t understand profundity.
Don’t tell me you have nothing to write – that simply means you’re not doing your job – your job is seeing new people every day – the easy ones – the hard ones, but each unique in who they are – I desperately want to hear about them.

Remember – we were the ones who had the first facts about the VA. About the medical holds – about those ready to jump out of their chairs when someone went by (that’s why I redid my office – so they could control the corridor – even though I liked the office the other way. Can you imagine making a change for the client instead of for me – try going to one of the other areas on base and see how you are treated.

I also want to hear about you – your families – your vacations – still look forward to seeing Peter’s African trip – the detail about Arizona – Pat Ryan has been great in filling me in on where he’s at, and I enjoy each item and can recall them all. I pray for your children and recall what you have shared with me. I was so profoundly moved on one occasion with tears that flowed from the hurt of a grown child, frustration and love – this is heavy weight stuff and should be handled with total respect and honesty and discernment. Never gossip – never to be shared with another but handled in complete confidentiality – I write of heavy stuff to make a point or two but I’m really interested in the simple things – the flow of the future – never – never internal politics, gripes, etc.

I’d like to be part of the team – I’d like to know what to pray for - I’d especially like to know about failure and success – Bill was wonderful for me – I made him listen to me about every client - success and failure I was having – I needed his reinforcement – I needed to say it and get it out of me – to put it on the table – to make it better – to get another’s perspective - this was true about almost every workshop and class – how can the next one be different, and how can I make them better. Sometimes the answers are right there in your face - often they require humility, which I lack to the detriment of my clients.

YOU ARE A TREASURE HOUSE INVOLVED IN THE MOST PROFOUND WORK AVAILABLE TO ANOTHER HUMAN BEING AND THEIR FAMILIES.

Let me end with one story from my recent Denver trip. As you may know, my brother Charlie died in WWII, in the Japanese campaign. A chaplain wrote from his foxhole in the Philippines three months after my bother died - he was killed with shrapnel from incoming while on guard duty – as the chaplain said – not very heroic, but he wanted to tell us about what we already knew – the hero Charlie in life and how he was loved and respected by the chaplain and every one of the men in his unit – especially the leaders -because of his maturity, respect and love for them and they for him.

You may also know about my other brother Billy, who spent two and a half years in Stalag 24 where he begged us for correspondence and talked about being in hell. Again, when he got home saying he was no hero – he said he was in his foxhole and over the top a very big German pointed a very big rifle with the longest bayonet that had ever seen – he said his hands went up so fast his pants must have fell to the ground. We last met when he died as a young man, and I said his funeral Mass as a young priest. He was in his early 40’s.

I’ve also told you about Ray who as a Master Sergeant in Korea - was part of the very first Mash units which were not always booze and laughs. Somehow he also managed to get himself behind enemy lines where he was awarded a Purple Heart. It was at Fitzsimons Army Hospital in Denver that I last saw Ray - I was a freshly ordained Catholic Priest. It was not my visit that I now recount for you but that of his – at the time - 14 year old daughter. What she communicated to me and I experienced in her was the profound work you do. We touch not only clients – we touch families.

She came over with her husband on the Friday night of my recent visit to Colorado. We met at the door, and she was relieved. She said that she was sick at least three times on the way over and wanted to go back home. She said because of Fitzsimons, she didn’t know if she had the courage, physical or emotional strength to see me or deal with the visit. But we sat and had a wonderful visit. I love the gal. She has her own practice which she has owned for the last 24 years as a medical masseuse. She has two grown daughters and grandchildren. All of whom she adores. One daughter is an ordained liberal Methodist minister and the other is a fantastic soccer player. She played as a professional – and yes you doubters there is a professional woman’s soccer league. She teaches PE and coaches the school soccer team – her husband teaches 3rd grade. Now, back to the hospital visit and the importance of what you do.

What came next was a recall of her visit with me one night here in WA which was so upbeat – we carried on well into 4am and laughed and laughed and laughed. We were hooked on each other for life. She is now 53 with as many experiences of life as any of us have had. However, she said we were just not close enough to yet relate her Fitzsimons story but she was now ready. I attempt to briefly relate it here because I think it so important to you professionally, but already know I’m doomed to failure because it is not something to write about but to experience. She wonders how anyone can understand the emotional trauma of a 14 year old daughter visiting her 37 year old father who now weighed 76 pounds and yet made the best of it.

Her dad, my brother Ray, and her mom had been married for four years before their divorce. She loved him and had already lost him at 4 years old and now ten years later she was to lose him again. This had become even more complicated for her because both parents had remarried and there were other siblings whom she also now loved. She kept asking me the question which needed no answer – how can anyone understand these numbers and the trauma related to them - 14 –37 – 76. There is no answer. Do you remember 4 or14? Can you remember 37 and can you visualize leaving all behind? How about 76? I thought I was on the thin side at 125 lbs, coming down so fast from 190 lbs. She was still locked in that visit with her father at 76 pounds and would be there for the rest of her life and that is both good and bad. Bad in how much it hurt, but good in what she continuously does with that hurt. I hope that if she reads this she realizes how sacred it was to me, and I hope she will find in the retelling that I have respected that sacredness. Ray was not as heroic on the battlefield as he was in embracing his death. I think that left some hope for those he touched. I will never be the same after that story.

If Ray were your client, what might you have said or done that would have helped that visit in Fitzsimons for a 14 year old? Charlie went to the grave alone and is still there in the Philippines alone - I have his cross number – would that be something that you would do if you were me – visit that cross and say a prayer on sight?

I think this is my longest blog and although I empathize with you if you have read it, I also feel less bad (good English) because it began at 3am, and I thought it might be a useful use of this painful and lonely time of the morning. For the first time since I’ve been sick, Kris is not sleeping in the same room with me not getting her sleep. Mike has moved in while taking over the baby sitting duties. She is in Denver having a ball with her daughter and grand kids. Tim, Debi and Monty made the trip with her and all will be back Wed (May 10th). Mike almost got killed late last night when he told her and she bought into it that we were all at the local betting establishment – I was watching the poker table, and he was making me control my drinks – when she got me and I said I was getting tired, she was up to 2,000 – Mike was already a dead man – I said I was getting tired and thought I should be getting home and put Jessie on and when Mike said HE WAS ONLY FOOLING – it was too late – although he is doing wonders at the volunteer fire fighter academy, he’ll have to finish his last few months without a rear end.

I just told you that I want you to communicate with me, but it may be confusing as to how to accomplish that. You can leave a comment on the latest post, I attempt to check them all the time. You can click the link to the guest book and post a private or public message. If you leave an email address in the guest book, no one else can see it. Or, if you have my email address, you can communicate that way. I am hesitant to post my email on the blog as I will be overrun with spam. I will make an effort to respond to you
in a timely manner. Even though I yet responded, I read them all and love to hear from you.

God bless you all

Friday, April 13, 2007

Good Afternoon Ladies and Gentlemen From the Center of the USA - Denver, CO

Although, in trouble with everyone, I managed to get myself into a handicapped seat -took all my prescribed drugs - sucked it in big time, and I'm now stretched out in my daughter's new home - I am here to celebrate my daughter's birthday from a hospital bed they rented for me until my return on Monday.

Thank God the Dr. said okay, because there were few others in my court. Mike did a fantastic job on the Tacoma side and Tara on the Denver side. I've been resting since I got here, but it is worth while. It's one of the things that "Hanging in there" is all about. I can't have a collapse now because God wouldn't let everyone say "I told you so." Once I get home - I'll be good again.

I said to Bill Bettyas the other day that 70 would be a nice age for me to return to God because He has spoiled me and never allowed me to feel or think old. Old is sneaking in a little when I get nervous seeing the kids climbing things, when I want to go to bed earlier than before, when the noise level or music is too loud; but I'm hanging in there. I don't want to become an old fart.

Cross your fingers - I have an eye appointment two days after I return home. I had gone about two months ago, but he struck out, so I'm going to another. The eyes are getting worse and worse and its a disappointment because of all the reading, painting and computer work I do along with everything else. I guess if things don't improve, I'll have to find something else; but I've been happy with all of the above. It's one of my whining areas.

I finished my Mind/Body class at Allenmore - it's a Harvard Program sponsored by MultiCare = very much worth the pain and effort to attend. Kris and I grew a lot from taking it together.

It snowed here today and yesterday. Below 30. If I don't at least find a horse to ride in the next few days, maybe I can go for a sleigh ride.

Hope you all enjoyed your Easter and take comfort in the Resurrection as I do.

Saturday, March 24, 2007

Old Life Evolved into New Life















Spring is here -
Today is the first day.
I see new life outside my window.
My home has no less than five birthing robin nests
that are on the house and not within the many trees.
Protected by the parents - who save them from the invasion
of all the big birds that would suck the life out of them.
The trees will soon block my view of the lake
with the blooms and new leaves from those small buds that I now see.
And within me life continues to re-blossom.
Yesterday at the lab my blood was again altered.
I pray that the new life that surrounds you
would be recognized by you and renewed in you.

Body & Mind -
My meditation class is finished, and I'm so happy I accepted the challenge. I didn't think I could take the three hours of pain, but God was Good. Bottom line - new skills for controlling personal pain and focusing.

I snuck in a presentation on taking the "in" out of incurable and received one of only two rounds of applause given during the 10 week clinic - it took me 1/2 an hour that I didn't think I could do, but did do, and it is now history. My instructor told me at the end that I had been an inspiration and had helped make it one of the best clinics. I say this to you not out of pride, but out of humility - look at what God can do with us if we but provide the broken material.

She also reviewed my book on the last year plus, and unless she lied, she was very complimentary and encouraged me to bring it to conclusion and publication - Wow. Others have been as encouraging, and all for different reasons - Jessie has begun the editing and publishing process - cross your fingers.

Birthdays -
As you know this was birthday month for us, and we celebrated together. The house was full with family and long time friends. I found it a little difficult to follow conversations but not the laughter and joy that filled the house - it was the best ever.

Denver, CO -
On Wed morning of this week - it was not the kids who cried. All my children were together with me as they prepared to take Tara, Jim and our grand children (less Monty) to the airport. They left us after a year plus to go to their new home in Denver. We all wept from the bottom of our souls - when you love much - you also suffer much. The kids are still wondering when they will be coming back home.

On my last job, I volunteered to go to Iraq - it is unfathomable to me to see my children go. My family surrendered three brothers to war - when will it end? I don't have the courage to see another telegram.

- Frank

Friday, March 16, 2007

Happy 70th Birthday Frank!

Here it is March 16, 2007 and now we're looking forward to March 16, 2008! Congratulations!

Sunday, March 11, 2007

Good Cop - Bad Cop

I saw the doctor on Friday. I have never seen him so elated. I think I have broken the doctor patient norm of not liking each other. He put everything down and said "I have never had a more remarkable case. You have met and exceeded every expectation I have had, and those I would dare not have. Your blood work is right on. It's just remarkable. I have never seen a multi myeloma patient do what you have done starting from where we were in the beginning. As your doctor, I cannot be less than very excited with your progress. Just amazing!!"

"However, you know you are incurable. You must behave yourself, and after last Tuesday you seem to understand that. (I had gone from the previous Tuesday non stop stretching myself almost every day with absolutely no pacing). I think on Tuesday I was on the way out - just absolutely exhausted, feeling terribly sick and not wanting to do anything. (Kris thought I might even be on the way out). The doctor turned to Kris and said "I know he is strong willed and you are not, but from now on - you are in charge of his pacing and most importantly his scheduling. End of story - you both know what you have to do. I'll see you in a month." For a happy guy, he sure was pretty tough!

- Frank

Saturday, February 03, 2007

Who Can Ask for Anything Else?!

I asked for your help and evidently I got it. Today was my doctor visit and in my mind it was a big one for me. I got everything I hoped for, and the doctor seemed very happy. We got the blood tests back and things have stabilized. He was not going to take me off my new medications; we are going to stick with them. ItÂ’s one of the most hopeful things out there, and it now seemed like it is making an impact.

Although my protein level was still high, it has begun to slow down, and he thought it would soon be under control. My blood thinner needed a little tweaking and that has been done. I went back to the lab and received transfusions of medications for my bones. In essence, I was going to stay on the same program and would not have to return to another full chemo program which I had already done three times. Each previous chemo had been very helpful, but you begin to run out of options with my cancer.

My blood pressure was high but I believe that was because of how important this visit was to me. Enough of the details and the specifics - which I have probably messed up anyway – the message was good and, to a great extent, it was good because of your continued prayers and support. I am indebted to you all – my sincere thanks.

- Frank

Tuesday, January 30, 2007

The Birds Are Back















Debi Kabisch - My Guardian Angel Nurse

What a time for me! What a time for Laura! I’m getting to see them again and enjoying every moment and she is seeing them for the first time as a potential meal. Last summer she was merely curious – this summer we need to watch her.

I can’t wait for all the new signs of continued life I’ll be seeing during the next few weeks. I’m hoping that I’ll be able to re-find my backside and then get off it and around to enjoy the beauty that surrounds us. Kris and I keep promising ourselves that we’ll spend more time at Nisqually. I really want to get serious about taking pictures and then following up with watercolor. The year before last I got a lot of pictures of some deer. One night - Bill Bettyas and I went down to Nisqually just take pictures. We took a poor evening - lots of pictures - and I came away with one of the barn with a storm brewing over it that I’m very happy with just that one.

Sometimes we want everything to go our way, but that’s not the way it works. Even great artists have huge wastepaper baskets. Once you change your audience from others being happy with your work - to simply you being happy with it - you have reached the doable. Most of the stuff I have hanging from walls you would have probably hid it, but for me – it represents something new – something I gave a shot to – something I invested a lot of time into and got a lot of personal reward out of. If I would be completely lucky – maybe one other person might also get some pleasure out of it. It doesn’t represent my weakness, but rather my strength. I’m a very limited human being, but that’s okay because God still loves me despite - if not because of - my inadequacies. I’ll never be a Johnny Unitas, but I sure had fun throwing a football, and I’m glad I gave it a shot. Only a fool really thinks there can be two Johnny Unitas’s.

The birds are back and as I look out the window I would almost think some of the warmth of summer is also lingering around out there. My praying continues to move from the finality of something to the beginning of something else - from the end of life to the renewal of new life. I don’t know where (I must have been sleeping) the word death disappeared from our vocabulary, but please don’t hesitate to use it in my regard. I will die, but I will more fully live the beginning of my new life. I’m not waiting for a space vehicle, but a smile from the Father, the guidance of the Holy Spirit and the companionship of Jesus Christ. When the birds are all back I’m hoping that my spirit will be fully alive no matter what the state of my body.

As I wait for the doctor’s guidance this week as to the new strategy, cross your fingers and pray for all those who have asked for those prayers. Have a great week and look for the birds. They are out there, and they are worth the look.

Friday, January 26, 2007

Another Beautiful Day, and It Really is!

Updates:

Waiting for continued insight into remission/non-remission questions and change of strategy. About 2 weeks out to learn more.

Into 2nd week of Mind/Body classes and getting a lot from class/homework and working through everything with Kris. A real integration of the things we need to be into at this time. We still struggle for a time and do get overwhelmed.

Retreat: I don’t want to bore you but the spiritual part of who I am has been very much shaped by my spiritual and religious development - absolutely critical to me. In fact, I’m not sure of where I would be without it. The personal retreat has led me to searching the scriptures to see what there is of my immediate future. I’m focused on the passage of the Transfiguration – it seems to be very appropriate for me – when this whole thing started I wanted to see Jesus alone, and I was ready to pitch tent and stay with that vision, but the Father said – there are things yet to be done. Since then I have been trying to find those things and continue to find my way. It has been very fruitful. If interested – look it up yourself.

Nice weather – it really helps to get this nice weather – went out to eat yesterday with my son Tim and his son Monty – 3 generations of Kabisch – the abuse of the name will continue into the future – may he have thick skin.

Thursday, January 11, 2007

Two Issues From The Snow of My Window



Still in Limbo (That'’s Theological Talk) - Remission or Non Remission?
I covered most of this issue in my last blog and would just as soon leave it there until the continued month trial ends. My Allenmore Stress and Meditation Class tonight was cancelled due to weather, and we'’ll fly by the seat of our pants tomorrow with regards to my lab blood work. If the weather is bad, we'’ll wait until Monday to go. I think that ends the housekeeping side of things.

Laura
One important question I might need to discuss with a more wiser person than myself - Am I having too many intense conversations with Laura, my therapeutic cat? I enjoy them - her responses are pretty solid -– she continues to learn new tricks although I'’m very proud of our fetch routine. She'’s been here a good amount of time, and I think she tends to still be grateful for getting her out of that darn cage with the two others she was in with. Presently, she is storming through the two rooms I have set aside up here on the second floor. She seems to have two gears - one - when she is going slow preparing to pounce on my chest from some hidden direction. The other - when she tops 90 MPH and takes down everything in the way. That'’s when I can use some continued guidance on my language with her. If she were a parrot - she'’d have quite a vocabulary herself. I also better understand now what it really means when you say "“she'’s climbing the walls."” She spends a lot of time at ceiling height. I have a few words for that also as she brings down some of my pictures as I'’m clearing up shattered glass. I'’ll touch back on these issues at a later time. Meanwhile - any insight into my behavior - please share.

Hang in there - stay well -– keep us in your thoughts and prayers.

From my bed - Frank