Friday, September 14, 2007

With The Good News – Comes Also The Bad (??)


This is my "after" picture. As you can see, not too bad, huh! I'll explain below.

The good – I’m still in a state of the cancer being controlled and that continues to be a miracle from the original 6 day death sentence; however, it now sounds like another incurable that will be a pest the rest of my life – it’s called lymphedema. It’s directly related to the swelling I have been having in my legs and the stockings I am still waiting for but should be here within days. My specialist may have some less dramatic information than I have found in the book she has shared with us. I hope she has and has caught the worst of this which I believe she has. She gave the book to Kris and said don’t allow me to see the pictures, but you know it became the only thing I was interested in seeing and reading about – sorry about that – Kris thinks they look like pictures of “elephant man”. Maybe that’s why I go to the Zoo so frequently.

You have to wear the stockings for the rest of your life and bandage them at night for the same period. She said she would teach us to bandage next visit. It looks like the – wise guy should have not flown to Denver after all. There are special concerns about flying. I’m still glad I didn’t know them – it was the opportunity of a life time and I’M GLAD NO ONE STOPPED ME. I’ve also been classified hypomanic which could be a good thing or a bad thing. Since I have a number of bad things creeping into my corner I’ll take it as good.

I continue to be out every day since I got my wheel chair, and although exhausting, it is also a good thing. I no longer fall asleep but pass out. Kris and I were at Nisqually – she was exhausted and revolutionary when I said I thought I could do the 5 1/2 mile trail. Thought she would feed me to the eagles. They may be back, but that doesn’t make them any less hungry.

Mike and Jessie had me to the Pound last week followed by lunch on Ruston Way and getting the tire fixed on the other car – too much for me - we skipped the Zoo, although Mike’s friend took me with his very sharp nine month old son – he’s trying to keep me young and doing a good job. I got some great pictures.

I’ve got loads of things on my medical schedule and saving an entire day for a full class in Adobe Photoshop. Got some financial stuff done when Kris’s sister was here for the month and they both got a lot accomplished with work around the house.

1 comment:

Anonymous said...

I'm glad you are getting around so well. the schedule you describe while out would make everyone tired. Manual draining of the lymphatic sytem is possible. I know they do it with private massage practioners and it is offered by the VA for patients with lymphatic caused swelling issues. Had my first succesful apartment turn over this weekend. one more on the 28th and I will be fully rented with one year leases. Then it is off to whidbey island for three seminars and one at fort lewis. before a big trip to texas and indiana for the thanksgiving holiday and my 30th reunion. pat